Organ donation in the African American Community

February 21st, 2012

There is no time like the present to help celebrate Black History Month by signing up to become an organ donor and making the commitment to give back. New York State has the 3rd lowest rate of donation in the country, while at the same time having the 3rd highest number of people waiting for a life saving transplant on the waiting list. Many people would be surprised to learn that African Americans make up a great amount of those waiting.

The need for life saving organ transplants in African Americans is often due to the rate of high blood pressure (hypertension), diabetes and heart disease among those of African American descent. Although African American’s make up a great amount of the population waiting for a life saving organ, many African American’s are reluctant to sign up to become an organ donor themselves. Because of this many African Americans may have to wait longer to receive a life saving transplant, getting sicker over time and possibly even dying waiting for the organs they need.

It is beneficial for African Americans to receive organs from their own ethnicity because certain blood types are more prevalent in African Americans such as O+ and A+. Matching blood types is necessary for transplantation and therefore the need for African American organ donors is especially high. Receiving an organ from another member of the African American community also results in less chance of organ rejection.

It is up to us to help close the gap between the number of African Americans needing a life saving organ transplant and the number of African American donors currently enrolled in the organ donor registry. Signup for the New York State Donate Life Registry now by visiting unyts.org today!

Alonzo Mourning – NBA All-Star and Kidney Transplant Recipient

Former Miami Heat star and recent star of the New Jersey Nets, Alonzo Mourning took a giant step against kidney disease on Friday, December 19, 2003 when he underwent a kidney transplant at NewYork-Presbyterian Hospital/Columbia University Medical Center. Mark A. Hardy, MD, Auchincloss Professor of Surgery at Columbia, performed the transplant. Mr. Mourning was diagnosed with focal segmental glomerulosclerosis in October 2000. The disease affects the filters of the kidney that remove toxins from the blood.

A kidney transplant functions at its best as a very effective treatment of renal disease, allowing the patient to function normally with few dietary restrictions, minor physical limitations and continued maintenance on medications. In regards to the success of Mr. Mourning’s transplant, Dr. Hardy says, “I am very optimistic that Mr. Mourning’s transplanted kidney will function well for a long time. And I look forward to Mr. Mourning’s increased activities in promulgating organ donation to the American public, which I expect to be highly productive and beneficial to the many patients waiting for organs on the transplantation lists.” (Department of Surgery)

Alonzo Mourning for Organ Donation VIDEO (Organdonor.gov)

Sources: Us Department of Health and Human Services, The Office of Minority Health, Department of Surgery, Organdonor.gov

 

Why should African Americans Donate Blood?

February 13th, 2012
  • By donating blood through Unyts, you will be helping your family, friends and neighbors right here in Western New York.
  • Donated blood is the only source for those who need it. Despite amazing discoveries and breakthroughs in medical research, there is no substitute for the contents and functions human blood provides.
  • Odds are 1 in 3 that you will need blood during your lifetime but only 1 in 33 that you are a regular blood donor.
  • Increasing African-American donations is vital because blood types O and B, the blood types of about 70 percent of African-Americans, are also the blood types most in demand.
  • Genetically-similar blood is preferred for those who need repeated blood transfusions, and for conditions like sickle cell disease (SCD), which primarily affects African-Americans. Blood that closely matches a patient’s is less likely to be rejected by the patient and can mean fewer complications after a transfusion.

 

Justin’s Story (Video)
When Justin was a baby he would scream, cry and hold out his hand whenever he was suffering from pain related to sickle cell disease (SCD). Doctors diagnosed him with the incurable disease when he was just a year old. Justin needs fresh red blood cells from matching donors to replace his sickle shaped cells.

Justin is 14 years old now and despite the disease he can enjoy typical teenage activities such as listening to music and playing football. He keeps his SCD under control with folic acid, vitamins and by staying hydrated, but he always knows when he’s about to experience pain. He says it’s almost unbearable, but he usually feels better while being transfused with blood from donors. 

Justin’s mother and sister also have the sickle cell trait, but so far they have not experienced a crisis. Justin must cope with SCD the rest of his life. With no cure in sight he knows more blood transfusions are likely in his future.

Ciera’s Story (Video)
Like many sixth graders, Ciera Nesmith loves cheerleading, spending time with friends and creating new outfits. But, unlike most girls her age, Ciera spent almost half of her life in the hospital. Ciera suffers from sickle cell anemia which means her red blood cells are sickle or crescent shaped.

As with any blood transfusion the patient and donor have to be a match. In Ciera’s case, it’s easier to find a match for her in the African American community because people from the same ethnic background are more like to have blood that contain similar factors and antigens. Ciera will live with sickle cell anemia the rest of her life. There is no cure for the disease and blood transfusions are a necessity in order for her to stay alive.

 

Terrell’s Story (Video)

Terrell Wilson said his 21st birthday was the best birthday he ever had. He posed for pictures with the Orlando Magic cheerleaders, danced with Bo Outlaw and even talked to Dwight Howard on the phone, but this once in a life time birthday party would be his last.

Doctors diagnosed Terrell with leukemia after he developed a cold and flu-like symptoms he just couldn’t shake. He relied on blood and platelets to get through chemotherapy treatment, but what Terrell really needed was a bone marrow match. He spent weeks on end in the hospital waiting on a match that never came through.

Florida’s Blood Centers Chief Medical Affairs Officer, Dr. Tisha Foster says, “In order to find the right match that the transplant can be successful they’re most likely to find a match within their own ethnicity, so it’s really important that we have a variety of ethnicities on the bone marrow registry in which to choose from for these patients.”

Terrell passed away on Christmas Day 2009, but his legacy lives on as his story continues to inspire people to donate blood and join the National Bone Marrow Registry.

 

Thank you to Florida’s Blood Centers for sharing these stories.
*Sources consulted for the statements made in this document include America’s Blood Centers, Sickle Cell Disease Association of America, Transfusion: the Journal of the American Association of Blood Banks, and Transfusion Medicine: Official Journal of the British Blood Transfusion Society.

Unyts Hockey Giveaway with Buffalo.com!

February 7th, 2012
WIN Sabres Tickets from Unyts

WIN Sabres Tickets from Unyts at Buffalo.com

Join us for the Sabres Blood Drive on February 20th! Share the event with your friends on Facebook too!

 

MLK Jr. Celebration Events

February 3rd, 2012

The 3rd Annual MLK Day of Service City of Buffalo event on Friday, 1/13/12 at City hall was very successful! There were about 15 vendors including ECMC, Kaleida, UB Dental Program, Witness Project, Belle Center, BNMC, and several others. Even though it was a very windy and snowy day – the attendance was great and very diverse. The info table started at 11am and the program at noon. Several people stopped by the info table to learn more about the importance of donation. They had a few speakers, a reading from MLK’s speech, a dance group from a local church and the Mayor. The program ended at 1pm and the info tables stayed until 2pm. I really like the quote they had in the program, “Life’s most persistent and urgent question is ‘What are you doing for others?’”

 -Esmeralda Sierra, Community Engagement Coordinator, Unyts

 

Photo Credit: Buffalo.com

Photo Credit: Buffalo.com

Photo Credit: Buffalo.com

Unyts collaborated with Concerned Citizens Following the Dream committee for the 14th Annual Dr. Martin Luther King Celebration at Kleinhan’s Music Hall on January 15, 2012. This is the largest Dr. King celebration in WNY and Unyts is not only a major sponsor of the event but for the last two years has invested staff to sit on the committee to ensure its success. Unyts commitment to the legacy of Dr. King and the service to the WNY community is always a priority. This year’s event had 2,000 attendants and performers. With special outreach to students to participate as volunteers and learn about Dr. King and his principles of love, brotherhood, community, service and justice for all. Unyts is proud to be a partner in this wonderful celebration.

-Rahwa Ghirmatzion, Community Engagement Specialist, Unyts

 

On 1/16/12, Unyts participated in the MLK Day at the Buffalo Museum of Science – we had the opportunity to conduct a very successful blood drive and also share information about donation to many community members. Carol Tompolski – a Unyts volunteer working the event stated that – “There were hundreds of adults, hundreds of children. I would have loved to have gotten $1.00 for every baby we saw. Cheryl (another volunteer) and I spoke to many people, gave away a lot of information, and were able to get several individual to sign up on the donor registry. We tried to encourage blood donors and were successful. We gave away all of our bracelets as well as all the stickers and tattoos that we had. It was a great event!”

-Ryan Daley, Manager of Community Engagement, Unyts

 

2012 Battle of the Bridge

January 26th, 2012

Battle of the BridgeThe 2012 Battle of the Bridge was held January 18th and 19th at Canisius College and Niagara University. In its third year the blood drive challenge between the two rival schools brought in a total of 192 donors bringing in 152 pints of blood in two days. These donations will potentially save over 450 Western New York lives in our local hospitals. Both the Athletics departments and Student Life offices of each college helped spread the word on each campus. Corporate sponsors provided for a great addition the this year’s event. Just Pizza provided the winning school with a pizza party, AdPro Team Sports designed this year’s t-shirt that each presenting donor received, and Hard Rock Café in Niagara Falls brought cookies to each campus for donors to enjoy.

This year was a tough race, as Niagara University was the winning school for the third year in a row.

 

 Blog post by John Graves, Account Executive at Unyts

20 Million in 2012 Campaign

January 18th, 2012

Unyts is proud to support Donate Life America and their 20 Million in 2012 Campaign.

 

20 Million in 2012

New York State Donate Life Registry

Extraordinarily ordinary to Extraordinary

December 19th, 2011

By all counts, my life up until I was 12 years old was ultra typical; friends, little league baseball, soccer, street hockey, art, hide and go seek, tag.  Then there was the doctor’s appointment that changed the course of my life, those around me and even people I have not yet met.

It was an annual checkup.  I expected Dr. Varma to hit my knee with a hammer, pee in a cup and I would be on my way to my soccer game.  But things became strange when he asked me for a second sample.  The next thing I knew I was in Children’s hospital.  There was blood and protein in my urine.  Blood work revealed sky high Creatinine levels with enough potassium to stop my heart.  I was 12 years old; I was extraordinarily ordinary and now I need the extraordinary…a kidney transplant!

I became the luckiest boy on the planet.  I got the transplant I needed to survive.  As I got older it sunk in that a man died and donated his organ to me and this reality could not stand in vain.  I had to help other people; I had a debt to pay back.  I decided that my purpose was to help shorten the line for those in need of life saving organs.  I needed to make the supply bigger and demand less.  I decided that the most effective way to reach this end was to show others that transplantation works and I was to be the living example.  Here are some of the actions I have taken:

    • US Transplant Games:  I have participated in the past two US Transplant Games.  These games put me on a national stage and demonstrated visually that transplantation works.  I won a Bronze and two gold medals in swimming and 3 gold medals in track and field.

 

 

 

  • Kidney Walk:  Each year my family and I raise money and walk with the National Kidney Foundation.  Over the past two years, we raised more than $5,000 for my walk team “Adam’s Creatinine Crushers”.  This money goes to educate and make early renal diagnosis.

 

 

 

 

 

  • I am a significant contributor on my High School Track team.  I have won points in Hurtles, sprinting and High Jump.  When people see my accomplishments in track and then find out that I had a transplant, many are impressed.

 

 

 

 

 

  • October 16th 2011 was my 5th anniversary with my new Kidney.  We had a big celebration at a local Roller rink.  UNYTS was there and took donations for others in need and getting those in attendance to sign their donor card.

 

 

 

  • Worked hard in school making the Honor Roll even though there were stretches of time I had to spend in the Hospital because of various road bumps along the way.  I never made excuses.

 

 

 

 

 

  • Today, I am President of the Lancaster High School Donate Life club.  My duties are to raise awareness at my school, organize activities, recruit new members into the club, hold meetings, execute community projects and work close with my teacher advisor.  Currently, we are decorating a Christmas tree that we will donate to a needy family.  We are also working with the underclassmen where we are testing their Donate Life knowledge.  Over the course of the year we will be playing games to help them better understand our cause and then at the end of the year we will re-test them to demonstrate all that they learned from our games.

 

 

I want to continue showing people that transplantation works.  I want to go to College, get a job and become a contributor to society.  This successful demonstration means that more people sign their donor cards and more people become educated so as to never need a transplant.

One man died…I lived.  His gift will not be forgotten yet so many others need help.  I am obligated to be the person who helps those in need.  I am the person who encourages those who are afraid because they might need a transplant.  I am the one who is a living reminder that transplantation works.   By virtue of all this, I made the transition from extraordinarily ordinary to extraordinary.  I am pleased and proud to show the world that transplantation works.

 

Blog Post by Adam Henninger, Kidney Transplant Recipient 

You’re Invited…

October 21st, 2011
Thanks for Giving Invite

You are invited to our Thanks for Giving event! FREE to all who attend! Click the image to register.

Sacred Heart Academy Donate Life Club Visits UNTYS

October 19th, 2011

by Emily Ludwig ‘13

SHA Donate Life Club at UNYTS

SHA Donate Life Club at UNYTS

On Friday, October 14th, Sacred Heart’s Donate Life Club took a trip to Upstate New York Transplant Services (UNYTS), where they learned all about organ donations, viewed the lab where donated blood is processed, spoke with Social Media director, and heard about volunteer opportunities. The Donate Life Club is a group, sponsored by UNYTS, dedicated to promoting awareness about organ, tissue, and blood donation within the Sacred Heart community. Shown in the picture is one of the fifteen handmade quilts that are displayed around the UNYTS building. The patches of the quilt are made with love by the family of someone who has passed away and donated organs through UNYTS. Each patch is unique in that it shares the story of the person to whom it is a memorial. These quilts are truly a tribute to the amount of lives saved by organs recovered through the Upstate New York Transplant Services. Throughout the rest of this school year, the girls will work to share information about organ donation to others through a television commercial contest, assemblies, and a blood drive.

The Donate Life Mission Through the Eyes of Samantha

September 7th, 2011

Hello, everyone! Summer is quickly coming to a close, the days are getting shorter, and school is about to begin! But before you all get off the computer to go and finish all of that summer homework you’ve waited until September to do, I would like to share with you the Donate Life mission through the eyes of Samantha.  Samantha is a hard-working volunteer at UNYTS who feels very passionately about the cause. She very kindly agreed to answer a couple of questions that I had regarding her personal experience with UNYTS.

 

Q:   Why did you choose to volunteer at UNYTS?

A:   The mission of UNYTS is something that is near and dear to my heart. Being a donor sister and also a tissue recipient, I feel called to give back to an organization that has done so much for our family. I also feel really passionately about organ and tissue donation, so it’s a natural fit.
Q:   What do you feel is the greatest challenge in gaining support for the mission?

A:   I think that clearing up misconceptions about organ and tissue donation can be tough. I still talk to people who think that there are religions that forbid donation, or think that their deceased loved one’s body will be further harmed by the organ recovery process.

I think that if more people knew how many people were waiting for organ donations and how many people die every day while waiting, they would be shocked. I also think that if people knew how many different people their loved one’s gift of life could affect, they would be surprised.

 

Q:   Do you believe that kids are more receptive to discussing donation than adults are? If so, why?

A:   I think that most kids are open to the idea after they hear a little bit about it. I think that adults are more influenced by what other people think, so if they’ve heard some misinformation at some point, they’re more likely to hold on to that and run with it. Kids are open and honest, so I think that they’re the perfect little people to talk to about donation.
Q:   As a donor sister and tissue recipient where do you find your courage?

A:   My courage comes first and foremost from my Lord and savior Jesus Christ who sustains me through everything. God is good in all circumstances, good, bad and ugly. I also have an incredible family and an amazing support network of friends. I also get a lot of joy from knowing that my sister’s final gift was an amazing blessing to many people. As a tissue recipient, I’m proof that people’s lives are changed for the better by donation. I can walk normally today because of someone’s final, selfless act of tissue donation. Our family has felt the UNYTS mission come full circle, and that’s and incredible blessing.

 

I feel that Samantha is someone we can all learn a great deal from; both in the true meaning of donation and courage, as well as developing a better understanding of the Donate Life mission. Thank you, Samantha!

 

 Blog Post by Mary, guest Blogger with UNYTS this summer